All doctors who treat children and adolescents with (suspected) myocarditis.
This applies in particular to heart centers, children’s hospitals and pediatric cardiologists in private practice in Germany. Pediatricians, family doctors or adult cardiologists can also refer children and adolescents under the age of 18 to the registry.
- Children and adolescents (<18 years) who are currently being/have been treated with suspected myocarditis
- Declaration of consent from the parent(s) or legal guardian(s)
If you do not have a cooperation with an already participating pediatric cardiology department, please contact the study center at the German Heart Center of the Charité (+49 30 4593 2814). We will then discuss the next steps with you.
If you as a clinic are interested in including your own patients, we will be happy to advise you with regard to the ethics vote and data protection. Please contact us for this purpose. You will then receive your own documents and database access.
Participation in the register is voluntary.
The Mykke Registry is an observational registry. There are no additional study examinations, appointments or similar. Participation is pseudonymized so that the researchers cannot establish a reference to patients by name.
The study documents can be found here (Link still in progress). We would be happy to send you the documents.
The duration of the follow-up observation depends on the instructions of the treating doctors. As long as there is a medical indication, we would like to record the findings in the database. The aim is to keep the follow-up period as long as possible; there is no age limit for the follow-up.
Sobald die Patient*innen volljährig werden, erhalten sie durch das einschließende Zentrum eine eigene Einverständnis-Erklärung und können frei entscheiden, ob sie weiterhin teilnehmen möchten.